[News] Help Support Robert and Mabel William's son, John fight ALS
news at freedomarchives.org
Tue Mar 8 11:21:33 EST 2016
Dear friends, my good friend John Williams - son of Robert and Mabel
Williams - needs support. Please help if you can and do spread the word.
Hello everyone. I am sending this message today because my brother John
Chalmers Williams (son of Robert & Mabel Williams) was recently
diagnosed with having ALS or amyotrophic lateral sclerosis. ALS is also
known as Lou Gehrig's disease and it is a progressive neurodegenerative
disease that affects nerve cells in the brain and the spinal cord.
Motor neurons reach from the brain to the spinal cord and from the
spinal cord to the muscles throughout the body. The progressive
degeneration of the motor neurons in ALS eventually leads to their
demise. When the motor neurons die, the ability of the brain to initiate
and control muscle movement is lost. With voluntary muscle action
progressively affected, people may lose the ability to speak, eat, move
and breathe. The motor nerves that are affected when you have ALS are
the motor neurons that provide voluntary movements and muscle control.
Examples of voluntary movements are making the effort to reach for a
smart phone or step off a curb. These actions are controlled by the
muscles in the arms and legs.
There are two different types of ALS, sporadic and familial. Sporadic
which is the most common form of the disease in the U.S., is 90 – 95
percent of all cases. It may affect anyone, anywhere. Familial ALS
(FALS) accounts for 5 to 10 percent of all cases in the U.S. Familial
ALS means the disease is inherited. In those families, there is a 50%
chance each offspring will inherit the gene mutation and may develop the
disease. French neurologist Jean-Martin Charcot discovered the disease
While John's health insurance will cover traditional medical approaches
that deal with ALS (none of these are geared towards a cure) they do not
cover non-traditional or experimental approaches (such as various stem
cell based treatments). So in an effort to help raise funds to
participate in those experimental treatments and cures, which cost many
tens of thousands of dollars, the family and friends of John and his
wife Lisa have setup two major fund raising initiatives.
The first initiative is a go fund me page which can be accessed using
the following link:
The second initiative is a tribute and dinner on May 7th from 4pm to 6pm
and a panel discussion from 6pm to 8pm at the Charles Wright Museum of
African American History at 315 East Warren Avenue, Detroit Michigan
48201 (313) 494-5800. The fund raising dinner will have a $50 cost.
Please visit http://brotherjohnwilliams.weebly.com/ to purchase tickets
and get general information.
Any help that you can provide will be greatly appreciated!!!
You can contact me at Frank Williams at fhwdaman at hotmail.com
<mailto:fhwdaman at hotmail.com> (734) 751-9275, or Doreatha Ewald
pdmewald at wowway.com <mailto:pdmewald at wowway.com>(586) 778-3617 if you
have any questions.
Freedom Archives 522 Valencia Street San Francisco, CA 94110 415
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